Well it has been a busy last couple of days!! I'll start off from Thursday, after the first dose of Chemo. Drew did really well! We finished up the treatment, and you couldn't tell a difference in his disposition. He got sick once overnight Thursday night--but otherwise slept all night. Friday comes and as the doctors were in our room for Rounds, the nurse tells us there is a problem. His central line was leaking from a crack. The doctor ordered a halt on the day until we consulted with surgery. This line had to be repaired or replaced before we could continue our Chemo treatments this week. My heart sunk....another set back?! Something else going wrong?! Surgery had a busy day, they wouldn't be able to get him in until late in the day. Which was okay medically to have a slight delay in the sequence of Chemo treatments, but it really needed to be done Friday sometime. While we waited for surgery to have room for us, they had to put in a real IV in his vein to keep fluids going. On an almost 2 year old this is kind of a big deal! But Drew, like he seems to always, handled it well. We got it placed, he took a nice 2 hour nap, and had a fun time playing with Molly (who came with Michelle mid-afternoon) before we got wheeled down to pre-op. Josh joined us there after work and was there to take over after he was brought back up. They ended up not being able to repair it, and instead had to replace the whole line. By the time they got back up to the room, had some fluids run, Chemo treatment dose 2 ran from 10:30PM-4:30AM. Josh has been with him today and has reported that its been a pretty routine day. He's been running around, enjoying the outdoor patio we've found, took a hopefully-his-new-normal 2 hour nap, and has only gotten sick once today. Wonderful that he isn't feeling too sick, an answer to direct prayers!! Once again I'm reminded not to get anxious and upset by things as they come up--God is in control, and works all things out for our good. This cycle has 4 days of treatments, we'll have to see how it goes, and whether this delay effects getting home on Monday. Pray it doesn't or that at least we can be packing up first thing Tuesday! And I'll also keep asking for prayers that the stem cell collection process goes well next week, and that no infections occur.
It was so nice to have last night and today with my good friend Michelle. Molly, her and I had a lovely first half of the weekend together. Molly and I dropped her off in St Paul tonight where she'll fly back to New Orleans tomorrow. Thinking ahead for next week IF we do get to be home together, I could use some prayers to not get overwhelmed! With Josh starting his second week on a new job at the Corporate office, it could probably be a little nerve wracking to get back to managing both kids (let alone all the extra care Drew requires now), along with trying to figure out a new schedule! I have great friends here though, that have literally filled my deep freezer with meals--so cooking won't be a stress for a long time! We have so much to be thankful for!
Thank you for your continued prayers!
~Heidi
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